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As President Trump signed the Right to Try Act into law Wednesday afternoon, 8-year-old Jordan McLinn of Indiana bashfully attempted to hug the president, who missed his first few tries. After a third attempt, the two embraced.McLinn has Duchenne muscular dystrophy, a degenerative genetic disease. Symptoms first appear at 3 to 5 years of age, and children afflicted with DMD are likely to be wheelchair-bound by the age of 12. Life expectancy was until recently very short -- many did not survive beyond their teen years, according to the DMD website. But advances in care have extended life exp [url=https://www.cup-stanley.us]stanley flask[/url] ectancy into the early 30s and longer in recent years.Supporters say the legislation Mr. Trump signed Thursday could help McLinn get access to experimental drugs and treatments [url=https://www.stanleycups.at]stanley cup[/url] not yet approved by the Food and Drug Administration FDA . President Trump hugs Jordan McLinn, who suffers from Duchenne Muscular Dystrophy DMD , before signing the Right to Try Act at the White House on May 30, 2018. Getty There are no options, but now you have hope. You really have hope, Mr. Trump said during the signing. [url=https://www.stanley-tumbler.us]stanley tumbler[/url] Mr. Trump gave McLinn one of the signing pens, squeezed his cheeks and made a joked about getting the pen back later.The youngster is no stranger to politics. When the Right to Try legislation came to the House in March 2018, Republican represe Anhm Senate Passes Bioterrorism Bill
Today s meeting between White House Chief of Staff Josh Bolton, Speaker Nancy Pelosi D-Calif. , Senate Majority Harry Reid D-Nev. and Sen. Mitch McConnell R-Ky. and Rep. John Boehner R-Ohio , the GOP leaders, over the Iraq funding bill did not go well, both sides said afterwards.Bolt [url=https://www.stanley-cup.ca]stanley canada[/url] en told the Democrats that Preident Bush will not accept any funding bill with a withdrawal timetable, even if Bush can waive the timetable. Democrats were upset about Bush s unwillingness to negotiate, saying the president refused to acknow [url=https://www.stanley-cup.pt]caneca stanley[/url] ledge that a majority in Congress, and the country at large, have turned against the war. ponent--type-recirculation .item:nth-child 5 display: none; inline-recirc-item--id-c840ee78-8c88-11e2-b06b-024c619f5c3d, right-rail-recirc-item--id- [url=https://www.stanley-cups.fr]stanley fr[/url] c840ee78-8c88-11e2-b06b-024c619f5c3d display: none; inline-recirc-item--id-c840ee78-8c88-11e2-b06b-024c619f5c3d ~ .item:nth-child 5 display: block;

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